Week 10
What makes support genuinely accessible for independent travellers with Autism Spectrum Disorder?
In Part 1, I explored what autistic adults appear to want and need from air travel, identifying recurring themes around predictability, clear information, sensory control, choice, navigation support, communication and autonomy. Part 2 developed this further by questioning what independence actually means and recognising that autistic people can have very different, and sometimes changing, support needs. This raised a final question for this strand: if support exists, what actually makes that support accessible and useful to an independent autistic traveller?
My previous research into airports has already shown that a growing number of airports provide autism-friendly initiatives, including sensory rooms, familiarisation resources, hidden disability schemes and staff assistance. For this page, I wanted to move beyond identifying what support exists and instead consider the qualities that might determine whether that support actually works for the person using it.
Current Support Within Airports
The Hidden Disabilities Sunflower provides a useful real-world example of how airports are attempting to recognise non-visible disabilities. Its guidance for autistic travellers identifies many of the barriers already emerging throughout my research, including confusing airline apps, baggage check-in, security, queues, crowds and unexpected disruption such as delays. It also highlights existing responses such as visual guides, preparation videos, sensory rooms and trained staff who recognise the Sunflower.
What interests me here is that accessibility involves more than simply putting a facility into an airport. For example, a sensory room may provide somewhere to escape an overwhelming environment, but it may need to be located, understood and sometimes booked in advance. This raises a wider question about whether an accessible service is genuinely accessible if using it creates another task for an already overwhelmed traveller.
The National Autistic Society similarly recommends preparing for situations where travel does not go according to plan. Its guidance suggests developing a calm plan, scheduling recovery time and establishing alternative ways of communicating when speech becomes difficult during overwhelm. This is particularly relevant because it shifts accessibility away from assuming that preparation can prevent every difficulty. Even a highly prepared traveller may require different support when something unexpected happens.
Designing the Environment, Not Just the Individual
MacLennan et al.'s study, “It Is a Big Spider Web of Things”: Sensory Experiences of Autistic Adults in Public Spaces, moves this discussion beyond individual coping strategies. The research investigated autistic adults' sensory experiences of public spaces and considered what makes particular environments disabling.
The research is important to my project because it suggests that sensory accessibility cannot necessarily be separated into individual features. Experiences of public environments involve interconnected factors, and the authors describe implications for businesses, policymakers and built-environment designers to make public spaces more enabling for autistic people.
This changes the emphasis from asking how an autistic traveller can better cope with an airport towards asking how the airport environment itself might be contributing to the difficulty. A quiet room may be beneficial, for example, but it does not remove the sensory demands encountered while reaching that room, navigating security or waiting at a gate. Accessibility therefore needs to be considered across the wider environment rather than only through isolated adjustments.
Choice, Autonomy and Support
This connects back to the research into self-determination that I explored in Part 2. Thompson-Hodgetts et al. found that autistic adults understood self-determination through freedom, agency and having appropriate support to make choices and direct their own lives. Autonomy was also connected to being able to live authentically rather than constantly adapting to external expectations.
Although I previously used this research to reconsider my definition of independence, it also has implications for the design of support itself. Providing more assistance does not automatically create greater accessibility if the traveller has little control over when or how that assistance is provided. Instead, effective support may need to preserve the person's ability to choose what they use.
This reinforces the idea that autism-friendly design should not attempt to create one predetermined journey for every autistic passenger. Accessibility may instead depend upon creating enough flexibility for different people to navigate and regulate their experience in different ways.
Routines, Space and Uncertainty
Rapp et al. explored this issue from another perspective by interviewing 12 autistic adults about their everyday movements and experiences of urban spaces. Rather than approaching autism and technology entirely through a medical model focused on correcting perceived deficits, the researchers attempted to understand autistic people's spatial experiences from a first-person perspective.
One particularly relevant finding concerned uncertainty barriers. Participants who were more self-sufficient still encountered barriers when moving through the city, particularly because their everyday lives required more frequent and varied journeys. This is interesting for my project because being capable of travelling independently does not remove the uncertainty created by unfamiliar or changing environments.
The researchers subsequently involved participants in a design session to discuss their conceptualisation and proposed design considerations. Their work suggests that technology and design can potentially support routines, spatial understanding and control rather than simply attempting to change autistic behaviour.
Although this study concerns urban movement rather than airports specifically, the principle transfers strongly to international travel. Airports are environments where people must move through multiple unfamiliar spaces according to external procedures and time constraints. The more independently someone moves through these systems, the more they may actually encounter uncertainty that they have to manage themselves.
Autism-Friendly Airports in Practice
Edwards et al. provide a much more direct connection to air travel through their evaluation of autism-friendly initiatives at Sydney and Gold Coast airports. The researchers interviewed 13 participants, including autistic adults and parents of autistic children, to understand how effectively existing initiatives met autistic travellers' needs.
Participants recognised improvements but continued to experience sensory difficulties and highlighted the importance of planning, accessible quiet spaces, communication and proactive staff support. The Hidden Disabilities Sunflower was also identified as particularly beneficial. The authors conclude that airports can either facilitate or hinder autistic people's opportunities to travel and recommend wider implementation of autism-friendly initiatives alongside comprehensive staff training.
This study is important because it demonstrates that having autism-friendly initiatives does not mean the accessibility problem has been solved. The way support is communicated, accessed and delivered remains important. It also reinforces the responsibility of the airport itself rather than placing responsibility entirely on autistic passengers to prepare themselves for an inaccessible environment.
Accessibility Through Participation
The European Disability Forum, drawing on Autism-Europe's work, makes another important point: autistic people need to be included in conversations about the places and services intended to support them. Its discussion of accessible tourism recognises that autistic people have unique needs rather than presenting a single model of autism accessibility.
It highlights examples including work by AsIAm with public authorities in Ireland and the development of autism-friendly environments and events. While this is not peer-reviewed evidence, it provides a useful practice-based precedent for involving autistic people when identifying environmental barriers and developing responses to them.
This connects strongly with my earlier research around autistic agency. If needs vary between people, designers cannot simply assume what an autistic person will find accessible. Autistic participation becomes an important part of determining what accessibility should actually look like.
Reflection
Across these sources, accessibility appears to involve much more than simply increasing the number of autism-specific services available. Existing initiatives such as sensory rooms, visual guides, the Hidden Disabilities Sunflower and staff assistance can clearly be valuable, but their usefulness depends on the wider system in which they sit.
This links directly back to Parts 1 and 2. If autistic travellers have different and changing needs, a single fixed accessibility pathway is unlikely to work equally well for everyone. Support may instead need to be flexible, easy to access, responsive to unexpected situations and capable of preserving the traveller's choice and control. The wider environment also matters: it is not enough to ask an autistic person to regulate themselves within an environment that continues to create unnecessary sensory, communication or uncertainty barriers.
An important distinction is therefore emerging between providing accessibility features and creating an accessible experience. The first can be achieved by adding individual interventions; the second requires considering how information, environments, staff, support and different stages of the journey work together.
This also brings my three Want and Need pages together. Autistic adults appear to value predictability, clear information, sensory control, choice and autonomy, but they do not all need these things in exactly the same way or at the same intensity. The question for design is therefore becoming less about creating one ideal “autism-friendly” journey and more about how an airport can give different autistic travellers greater control over their own experience.
Key Notes
- Existing accessibility features are valuable, but availability does not automatically equal accessibility.
- Support needs to remain usable during disruption and overwhelm, not only when a journey goes according to plan.
- Choice and autonomy should remain central to how support is offered.
- Accessibility should consider the whole journey, rather than isolated interventions.
- Autistic people should be directly involved in developing and evaluating the environments and services intended for them.
